Today I woke it with the same level of pain. The statistics point to a recurrence, but I am not fazed. Since January 2018 i was mistakenly diagnosed by 4 doctors. Again however, the treatment paradigm has shifted to bendamustine plus rituximab as upfront therapy, making the utility of this regimen for salvage much less clear. The most common cytopenia is anemia, and elevated LDH is present in less than 20% of patients. I thought that was age..Now that you all talk about it I did get itchy sometimes. Could yopu explain about what you meant by in your face. 2014. pp. They determined their is a mass in the lungs and swallon Lymphs. That wasn't true in my case, I was in terrible pain and was taking prescribed Vioxx by the 10 or so a day just to keep moving. Although itching is common in people with lymphoma, having itchy skin does not necessarily mean you have lymphoma. ), Schouten, HC, Qian, W, Kvaloy, S. “High-dose therapy improves progression-free survival and survival in relapsed follicular non-Hodgkin’s lymphoma: results from the randomized European CUP trial”. I hope you continue your good health. I feel scared too but feel less when I hear all the supportive comments from you and sharing here. What imaging studies (if any) will be helpful in making or excluding the diagnosis of follicular lymphoma? CancerTherapyAdvisor.com is a free online resource that offers oncology healthcare professionals a comprehensive knowledge base of practical oncology information and clinical tools to assist in making the right decisions for their patients. I was pregnant so I can't really help you. Ifound a lump on my cheek one day at work, right over my jaw bone. pp. Less than 15% of patients have B symptoms (fever, nightsweats, or weight loss). Hi Deanna, Oh yes and also very fatigued with some weight loss- not much though. 2013. pp. Your symptons sound just like my husbands he had a stuffy nose and could not shake it went to the pcp and he said it was sinus, then got nosebleeds and we went to the ENT, and it was It's been over a month - how did things go for you? Lancet. The most common hematologic disorder in patients with lymphoma is anemia, followed by thrombocytopenia and leukopenia. The only randomized trial of autologous transplant (ASCT) versus chemotherapy predated the use of rituximab. The overwhelming majority of patients with advanced stage FL will relapse following conventional therapy. I am praying for all of the people on this chat. The median time for needing treatment is at least 3 years. Approximately 9% of individuals with follicular lymphoma have a first degree relative also with a lymphoproliferative disorder, although the precise genetic risk factors are yet to be determined. (This paper demonstrates the improvement in treatment outcome and survival for patients treated with rituximab plus chemotherapy, as compared to chemotherapy alone for previously untreated patients with FL. I have completely changed my diet (No red meat) and my body is retaining blood with no bleeding in sight. No pain ever can compare yet so much pain came from worrying about my children. Specifically, using gene expression profiling, the presence of a T cell infiltrate may confer a more favorable prognosis, whereas an infiltrate rich in macrophages/monocytes may confer a disease with a more aggressive course and less favorable prognosis. DennisR. Complained to my husband about it all the time. I soon learned that most people with hernias were merely inconvenienced by the bulge in their abdomen, but didn't rea;lly feel any pain associated with it at all or only slightly. Allogeneic SCT is an option but the higher treatment related mortality needs to be considered. DennisR. i hope everything goes well for your husband. Further evidence for the need for additional genetic lesions is that mice engineered to overexpression the IgH- Bcl-2 translocation, develop follicular hyperplasia and not follicular lymphoma. 2003. pp. They do sound hopeful. Copyright 2000-2019 © Cancer Survivors Network, cathlinberreth01 our stories sound similar. I also had a strange ache under the shoulder blade....so weird. Follicular lymphoma is the second most common lymphoma in the USA and Western Europe and the most common indolent NHL. Looking back the symptoms were clear, but I'd thought nothing about them being connected to cancer. What should you tell the patient and the family about prognosis? 441(Improvement in outcomes by FLIPI score in the rituixmab era. J Clin Oncol.. vol. The median survival at 10 years ranges from 36 to 71%, depending on risk stratification by the Follicular Lymphoma International Prognostic Index (FLIPI). I am 31 no kids yet (but want them bad) and would love to know how your treatment went since we are so close in age with same cancer :). returned to the dr office. Was all I could do to stay awake at work after lunch. Mine was follicular nhl stage 4. My tumors are located in the abdomen, but the chemo is shrinking them quickly. 1311-1318. Then wintertime I was low in vitamins so got B-12 injections and supplements. In Oct. this year I was bathing and noticed this large ball trying to hang out my right amrpit, that's when I almost fainted when I first saw it. The Martinelli paper (also known as the SAKK study) further demonstrates that the addition of four maintenance doses of rituximab increases remission duration, especially for previously untreated patients.). The only randomized study by Schouten et al. She knows I never go to the hospital. (The clinical international prognostic model for follicular lymphoma based on a large data set of patients treated from 1985 to 1992. I am concerned as not only have I have chronic sinus problems (dry throat, stuffy sinuses, slight voice change bc of mucus I believe) I have had a persistent itch in between my glutes, but specifcally one strange and itchy rash on my upper abdomen. About 4 years ago I felt a small ball at the right side of my upper neck, it didn't hurt, itch or grew in size; that was when I was 31. 3918-3927. There are at least 66,000 cases of nhl diagnosed every year. Abdomen is still swollen Not all such lumps are a sign of lymphoma, but when they occur at these sites, it’s advisable to have … ), (Radioimmunotherapy did not prolong remissions as consolidation after chemotherapy. I was very fortunate. NHL is treatable although a pain in the butt. Looking back the only thing I had was itching on my back when I got undressed. There were many complications from the surgery, including a serious infection that required an additional 45 day hospitalization and another major surgery. He said it was a sinus infection and put me on antibiotics.